‘We had to do something’: How illustrated books are helping young cancer patients share their stories

Sarah Curry Rathel and illustrator Bob Kelly, with Smile Books Project, created the book, “My Cancer Life,” to tell the story of Matthew Harrison, a sixth-grader at Chamberlain Middle School in Carlisle and his life dealing with Leukemia. NICK GRAHAM/STAFF

Sarah Curry Rathel and illustrator Bob Kelly, with Smile Books Project, created the book, “My Cancer Life,” to tell the story of Matthew Harrison, a sixth-grader at Chamberlain Middle School in Carlisle and his life dealing with Leukemia. NICK GRAHAM/STAFF

An author and an illustrator have produced another book about a local child battling a serious illness.

Sarah Curry Rathel, an author and founder of Smile Books Project, and illustrator Bob Kelly worked with a Carlisle Chamberlain Middle School sixth-grader to produce, “My Cancer Life.”

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The latest book chronicles Matthew Harrison’s battle with leukemia. Rathel, of Cincinnati, and Kelly, from Indiana, have written about 25 books, including several from Butler County children: Madison Smallwood (“Madison’s Message”), Dominic Watkins (Dominic’s Best Game) and Kyler Bradley (Forever KylerStrong).

Rathel, Kelly and Matthew, 11, recently led a school assembly at Chamberlain when Rathel told students each of the books take about three months to produce, and they’re constantly working on projects.

The books sell for $12 and cost $2.76 to produce, said Rathel, who has spent her career working with nonprofit organizations dedicated to helping seriously ill children and their families. The proceeds from each book, $9.24, is then donated back to the child, she said.

Sarah Curry Rathel speaks about the book “My Cancer Life” starring Matthew Harrison, middle, a sixth-grader at Chamberlain Middle School in Carlisle, during an assembly at the school Friday, Feb. 15. Rathel and illustrator Bob Kelly, left, created the book with proceeds of the book sales will help with treatment costs for Harrison. NICK GRAHAM/STAFF

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Matthew’s goal was to sell 1,000 books, the most in the company’s history. Rathel said that goal will be reached once Matthew sells the books in his possession. During the assembly, she presented Matthew with a check for $6,684 and said $2,500 more will be raised after the rest of the books are sold.

Matthew’s mother, Betsy, wrote a letter to Rathel and Kelly and told them Matthew had mentioned he wanted to write a book. He wanted to help other kids in the hospital, his mother wrote.

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A few days later, Harrison said she read about Smile Books Project on Facebook.

“My Cancer Life” mixes excerpts from the book Matthew began writing with the story he shared during his interview with Rathel. Kelly’s illustrations are sprinkled throughout the book.

In the book, Matthew offers tips and advice to help make the journey for others either going through cancer or who know someone going through cancer easier to navigate.

Rathel said the goal of the books is to help children “tell their stories. I can’t change what they’re going through. Seeing each child and knowing they have amazing stories to tell, we had to do something. There was a need and we wanted to make a difference.”

Matthew was diagnosed with cancer on June 10, 2017, and his final treatment is scheduled for September 2020, according to his mother.


Learning You Have Cancer

1. Try to stay positive and calm.

2. When you have to get your port accessed, it is easier if your nurse talks to you.

3. Try to make friends in the hospital that understand you and what you’re going through.

4. Have fun with your nurses and doctors. I have had Nerf wars and play Mario Kart.

5. Never show cancer fear, but if you are scared it is OK to tell someone. Dream catchers help if you’re having nightmares.

Meeting Someone With Cancer

1. You can’t catch cancer so don’t stay away from kids with cancer.

2. The mask kids wear when they have cancer is so they don’t get germs.

3. Don’t hit kids with cancer when they have a port in the chest, it can really hurt them.

4. Just because I don’t have hair doesn’t mean I’m sick, but just because I have hair doesn’t mean I’m not sick.

5. Don’t treat cancer kids differently. Treat them normally so they feel normal.

SOURCE: “My Cancer Life”

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